February 18, 2021

 Friends,

Kathie had a good day on Wednesday, I left about 8pm, but then 11pm-4:30am was not so good. I believe that she continues to have an upper respiratory pain or cough that wake her up; which leads to a sudden breathing anxiety; which causes hyperventilating and that cycle continues until we can break it with meds. Many times, I have no answer but to wipe a cold washcloth on her forehead and talk to her trying to calm her down. When Kathie is in this state, the emotional concern raises for all of the caregivers. Then without knowing what exactly is the cause… she calms, go to sleep and is peaceful. Prayer: wisdom to figure out the CAUSE. 

Many years ago, I realized that my goal could not be to fix Kathie’s right brain injury. My job is to keep Kathie comfortable and advocate (be her voice) for her care. With that goal in mind, today, I gave her a warm hydrotherapy bath and washed her hair… she fell asleep in the bath. For some comic relief, she hears my bad french accent say, “darling, your hair is beautiful,” as blow-dry her hair.

As I write today, we are on the patio, Kathie is in her wheelchair next to me breathing quietly as a warm breeze blows. I need to hold onto these moments and relax with her. Later today, we may be back "in the heat of battle,” but for now, God has granted both of us peace and we are grateful.
Dave & Kathie

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